Preventing Epilepsy Deaths: Clinician Toolkit
Examples of Empowering Conversations

When your patient frequently uses emergency services

If you want to help the patient avoid emergency room visits due to seizures

I notice you have called 911 (or visited the ER) several times after a seizure. Can you tell me about that?

My co-workers don’t know what to do when I have a seizure, so they always call 911, even when I tell them not to and that I am fine.

Safety after a seizure is just as important as safety during a seizure. Sometimes it can be challenging to determine when it is appropriate to stay where you are to recover and when it is safer to call emergency services to help you. We will include all of this in your seizure action plan so that everyone around you who has seen your plan knows the best way to help you.

I don’t know.  I wouldn’t know where to begin, and I don’t really want anyone to know I have epilepsy.

You don’t have to do this alone. I’m here to help. Let’s work as a team to create a seizure action plan that you can share with family, friends, and co-workers that you feel comfortable sharing with.  It really is important for people to know how to best protect you when you have a seizure.  You have been to the emergency room several times this year because the people near you did not know how to respond.  This will help prevent many emergency room visits.