Additional Resources
If you have resources you would like to recommend for this page, contact us.
- Agency for Healthcare Research and Quality SDOH Resources Page
- 2017 AAN/AES Sudden Unexpected Death in Epilepsy Practice
- AES position statement on SUDEP Counseling
- North American SUDEP Registry
- SPIKES Strategy to help doctors talk about difficult topics
- Partners Against Mortality in Epilepsy Resource Page and Webinars
- Managing Epilepsy Well Network to help improve epilepsy self-management
- Child Neurologist New Visit Toolkit (form to provide information to help prepare for your neurology visit available in English and Spanish)
- Managing Epilepsy and Seizures Infographic
- Dare to Say SUDEP Infographic
- Considering a Seizure Alert Device
- Danny Did Devices and Technology Page (includes grant program)
- Seizure Action Plan Coalition (Seizure Action Plans in multiple languages and formats)
- Information on Rescue Medications
- 988 Hotline
- CNF Disorder Directory (provides information on disorders and connections to disorder-specific advocacy and parent organizations.
- American Epilepsy Society
- American Academy of Neurology
- American Academy of Pediatrics Center for Youth with Epilepsy
- American Association of Neuroscience Nurses
- Centers for Disease Control and Prevention
- Epilepsy Learning Healthcare System
- Managing Epilepsy Well Network
- National Association of Epilepsy Centers
- National Institute of Neurological Disorders and Stroke
- Pediatric Epilepsy Learning Healthcare System