Preventing Epilepsy Deaths: Clinician Toolkit
Pediatric Examples of Empowering Conversations

When your pediatric patient has unsupervised seizures

Recommend supervision or monitoring as appropriate for their age and living situation

A seizure can happen at any time, including during sleep, so we must be sure someone can help you if you are in danger.  Do you have a family member or roommate that can help you if you have a seizure? And if so, how do you feel about using a seizure alert device at night?

My mom already worries about me all the time, and I don’t want her coming into my room at night.  I need some privacy.

We always want to take the whole person into account, and that means I want to think about your privacy as well as your safety. What are your current concerns with using a monitoring device while you sleep or when you are alone?  Having an alert device may stop your mom/roommate from coming into your room unless you are having a seizure.  It may give them some peace of mind. Would you like me to tell you about some of the different seizure alerting device features and options to see if they will work for you?

I really don’t want people coming into my room at night.  Isn’t it ok to have a seizure in bed?  It isn’t like I’m going to fall and hit my head or anything.

Hitting your head during a seizure isn’t the only risk for you.  Has anyone talked to you about SUDEP or sudden unexpected death in epilepsy?